More side effects

Here is an interesting video on how Herceptin works along with chemotherapy. Before Herceptin came along, I would have only had approximately 21 months to live.

While Herceptin and I didn’t get along on injection day, and add in my Paclitaxel chemo dose, I’m definitely feeling a ton of side effects today, including a splitting headache, upset stomach / GI tract, abdominal pain and heartburn. Not sure if it’s the headache and noise sensitivity, but I burst into tears while trying to have breakfast with the family.

My husband brought me lightly seasoned cucumbers as a small snack after breakfast, putting two aside without any seasoning, so that I could put them on my eyes, which were puffy from crying.

I’m now lying in bed with the dogs and listening to the rain outside. It’s somewhat soothing and making me feel better.

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Scary reaction to Herceptin

Chemo + Herceptin drips went from 8h15 to 15h45. What a day! With this new part of my treatment, I’ll be getting drips 6 out of the 8 next weeks.

Unfortunately, within a few minutes, I started showing moderate allergic reaction symptoms to the Herceptin (https://myhealth.alberta.ca/…/medica…/Pages/conditions.aspx… ) even though I had taken an antihistamine as part of my pre-chemo medication and received an IV dose of dexamethasone (https://medlineplus.gov/druginfo/meds/a616022.html) prior to getting the Herceptin drip. With all of that, I shouldn’t have had a reaction, so when I started showing symptoms, the nurses immediately took me off the chemo and gave me Benadryl via IV (https://www.breastcancer.org/treatment/side_effects/allergic).

Pumping Diphenhydramine (aka Benadryl) directly into a narcoleptic’s veins knocked me right out!

After the allergic side effects subsided fully, they observed me 30 minutes and challenged my body with the Herceptin again. Thankfully, I didn’t react further. I’ll be under close watch for the next 2 Herceptin treatments. Usually, by the third treatment, the expectation is that I should have acclimatized to the drug and I shouldn’t have any more allergic responses.

The Paclitaxel (https://myhealth.alberta.ca/…/medica…/Pages/conditions.aspx… ) treatment was thankfully uneventful. As I was leaving, i met another wonderful breast cancer patient and we exchanged details. Hopefully we will have a chance to meet again!

Now, I’m home resting but am feeling exhausted, headachy and heartburn is kicking in.

I had dinner in bed and N came in the snuggle me for a few minutes. Now, my turn to get ready for bed too.

Ice booties

Today marks the halfway mark of my chemo journey. I’m learning how to adapt to the various side effects I’ve experienced. After having severe Plantar Erythrodysesthesia from my last chemo treatment, I’m all set up with foot ice packs for this treatment.

My dad, who worked in the shoe business most all of his life, told me he knows about snow shoes but this was the first time he manufactured “ice shoes”.

We are taking the ice bags home as my dad has an idea on how to improve on this version. Perhaps we will start manufacturing new and improved “chemo ice booties” as a new venture? You can’t take the entrepreneur spirit out of this man!

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Doxorubicin and Palmar-Plantar Erythrodysesthesia

I met with my oncologist this morning and discussed my newest symptoms which appeared over the past 24 hours: new mouth sores; coughing up thick, yellow phlegm; red, goopy eyes; and Hand-Foot Syndrome, also know as Palmar-Plantar Erythrodysesthesia (PPE). I guess the lucky part is that it is only on my feet. It is an uncommon side-effect of the Doxorubicin I’m on. Check out the pictures of my feet! Within 15 minutes, the big blister on my right foot appeared and the others showed up at different times. This is what PPE looks like on the feet on a cancer patient.

Given I still have a cold, new mouth sores and now PPE, they cannot give me chemo on Friday without further risking my health. So, my chemo is delayed a week, which means more bloodwork on Monday, another visit to the oncologist on Wednesday and we hope that I am well enough to get my chemo on Friday next week.

You can read more about this odd side effect here cause by my Doxorubicin drug here: https://www.breastcancer.org/tr…/side_effects/hand_foot_synd

So, until these awful blisters heal up, I’m basically bedridden. Fun stuff!

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Mouth sores

Party in my mouth… not the fun kind. And these are only in the tongue and throat. I have some on my lower gums too. Unfortunately, this is a common side effect of chemotherapy. My oncologist has already prescribed me a “magic mouthwash”, which numbs the mouth and has a topical antibiotic in it as well.

After a few days, it wasn’t improving in all spots. I went to the doctor and it looks like those white spots (where I wrote ‘not teeth’) is actually thrush. So, I’m adding Nystatin to my drug repertoire.

More blended and soft foods to come.

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Answering friends’ questions

Several of the other questions I have had from many, many of my female friends relate to how I found my cancer and what the lumps feel like. Since being diagnosed, I have been voluntarily been groped by at least half of dozen women, just like you and me, who don’t have medical training, so that they could feel my lumps in my breast and lymph nodes.

So, how did I find it? Before I get into that, I want to give you some context on my boobs. Who ever thought I would be posting that statement on the internet…

Almost 20 years ago, I found a large lump in my right breast. When bring it to the attention to my doctor, he got me into my first mammogram. It showed that I had dense and lumpy breasts and I had a large mass (~4.5 cm in width) in my right breast. As a result, my doctor put me on a 2-year screening program as he felt it made me “high-risk”. It was part of my routine to get them done every 2 years. So, when it was time for my regular mammogram after I had moved to Calgary, I went to a walk-in clinic (it was impossible to find family physicians back in 2007/2008) and asked for one. I was told that in Alberta, mammograms were only offered after the age of 50 or for women who were considered “high-risk”. I told him that I was considered “high-risk” in BC, so he reluctantly gave me mammogram. It came back clear. He reiterated that I wouldn’t get one again until I was 50 or unless something changed. Then, in 2013, my relatively new GP ordered a mammogram for me since he wasn’t familiar with my lump and he wanted to get a new image. Again, it came back clear.

Fast forward ~6 years, which brings me to February of this year. I was washing in the shower and I felt a small, pea size lump under the big lump I had been carrying around with me for decades. It was smaller than the tip of my pinky and infinitely smaller than the lump I already had. It was so small, so in my mind, there was no way that something so small could be breast cancer, especially since the doctors had told me that I had lumpy breasts. And, it was hard to find. Even after the diagnosis, I couldn’t always feel it. It moves around.

But, I followed my instincts and booked an appointment with my GP the next day. After checked my breasts, he immediately booked me in for a mammogram and ultrasound. Long story short… the little, tiny lump underneath my big one, was cancer. And, it spread to the previously benign lump that I had. So now, I had two cancer lumps in my breast… or so I thought! My oncologist felt one under my nipple! I had never checked under my nipple since the nipple is lumpy. I didn’t think of it! But, there was indeed a lump under it!

Then, I found out it was in my lymph nodes. There is no way I could feel those, right? Wrong! You can check your lymph nodes, but I didn’t know that. This isn’t something they teach you in school to do. They are hard to find. Now, once you have cancer in them, I can feel them. But, if I check on the left armpit, I can’t. But honestly, I never, ever, ever checked my lymph nodes for lumps because nobody teaches you that. You should! Now that I know how to, I will be checking my left lymph nodes for swelling in the future. I don’t know how to explain where to find them, but ask your doctor to show you. Then, try finding them yourself, regularly. I have to close my eyes and focus but can’t find them now. Practice and learn what they feel like and report any changes immediately to your doctor.

If anything good comes out of this, I hope the women who felt my boobs and lymph nodes can better monitor themselves so they can better understand what they are looking for on their self-exams. I only wish I head learned what it felt like before having cancer myself.