Ice booties

Today marks the halfway mark of my chemo journey. I’m learning how to adapt to the various side effects I’ve experienced. After having severe Plantar Erythrodysesthesia from my last chemo treatment, I’m all set up with foot ice packs for this treatment.

My dad, who worked in the shoe business most all of his life, told me he knows about snow shoes but this was the first time he manufactured “ice shoes”.

We are taking the ice bags home as my dad has an idea on how to improve on this version. Perhaps we will start manufacturing new and improved “chemo ice booties” as a new venture? You can’t take the entrepreneur spirit out of this man!

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Doxorubicin and Palmar-Plantar Erythrodysesthesia

I met with my oncologist this morning and discussed my newest symptoms which appeared over the past 24 hours: new mouth sores; coughing up thick, yellow phlegm; red, goopy eyes; and Hand-Foot Syndrome, also know as Palmar-Plantar Erythrodysesthesia (PPE). I guess the lucky part is that it is only on my feet. It is an uncommon side-effect of the Doxorubicin I’m on. Check out the pictures of my feet! Within 15 minutes, the big blister on my right foot appeared and the others showed up at different times. This is what PPE looks like on the feet on a cancer patient.

Given I still have a cold, new mouth sores and now PPE, they cannot give me chemo on Friday without further risking my health. So, my chemo is delayed a week, which means more bloodwork on Monday, another visit to the oncologist on Wednesday and we hope that I am well enough to get my chemo on Friday next week.

You can read more about this odd side effect here cause by my Doxorubicin drug here: https://www.breastcancer.org/tr…/side_effects/hand_foot_synd

So, until these awful blisters heal up, I’m basically bedridden. Fun stuff!

Hopefully I didn’t scare you away? If you feel so inclined, I’d be thrilled if you could buy me a coffee or contribute towards some of my uninsured medical expenses.

Mouth sores

Party in my mouth… not the fun kind. And these are only in the tongue and throat. I have some on my lower gums too. Unfortunately, this is a common side effect of chemotherapy. My oncologist has already prescribed me a “magic mouthwash”, which numbs the mouth and has a topical antibiotic in it as well.

After a few days, it wasn’t improving in all spots. I went to the doctor and it looks like those white spots (where I wrote ‘not teeth’) is actually thrush. So, I’m adding Nystatin to my drug repertoire.

More blended and soft foods to come.

If this post was useful, feel free to buy me a coffee or contribute towards some of my uninsured medical expenses.

Answering friends’ questions

Several of the other questions I have had from many, many of my female friends relate to how I found my cancer and what the lumps feel like. Since being diagnosed, I have been voluntarily been groped by at least half of dozen women, just like you and me, who don’t have medical training, so that they could feel my lumps in my breast and lymph nodes.

So, how did I find it? Before I get into that, I want to give you some context on my boobs. Who ever thought I would be posting that statement on the internet…

Almost 20 years ago, I found a large lump in my right breast. When bring it to the attention to my doctor, he got me into my first mammogram. It showed that I had dense and lumpy breasts and I had a large mass (~4.5 cm in width) in my right breast. As a result, my doctor put me on a 2-year screening program as he felt it made me “high-risk”. It was part of my routine to get them done every 2 years. So, when it was time for my regular mammogram after I had moved to Calgary, I went to a walk-in clinic (it was impossible to find family physicians back in 2007/2008) and asked for one. I was told that in Alberta, mammograms were only offered after the age of 50 or for women who were considered “high-risk”. I told him that I was considered “high-risk” in BC, so he reluctantly gave me mammogram. It came back clear. He reiterated that I wouldn’t get one again until I was 50 or unless something changed. Then, in 2013, my relatively new GP ordered a mammogram for me since he wasn’t familiar with my lump and he wanted to get a new image. Again, it came back clear.

Fast forward ~6 years, which brings me to February of this year. I was washing in the shower and I felt a small, pea size lump under the big lump I had been carrying around with me for decades. It was smaller than the tip of my pinky and infinitely smaller than the lump I already had. It was so small, so in my mind, there was no way that something so small could be breast cancer, especially since the doctors had told me that I had lumpy breasts. And, it was hard to find. Even after the diagnosis, I couldn’t always feel it. It moves around.

But, I followed my instincts and booked an appointment with my GP the next day. After checked my breasts, he immediately booked me in for a mammogram and ultrasound. Long story short… the little, tiny lump underneath my big one, was cancer. And, it spread to the previously benign lump that I had. So now, I had two cancer lumps in my breast… or so I thought! My oncologist felt one under my nipple! I had never checked under my nipple since the nipple is lumpy. I didn’t think of it! But, there was indeed a lump under it!

Then, I found out it was in my lymph nodes. There is no way I could feel those, right? Wrong! You can check your lymph nodes, but I didn’t know that. This isn’t something they teach you in school to do. They are hard to find. Now, once you have cancer in them, I can feel them. But, if I check on the left armpit, I can’t. But honestly, I never, ever, ever checked my lymph nodes for lumps because nobody teaches you that. You should! Now that I know how to, I will be checking my left lymph nodes for swelling in the future. I don’t know how to explain where to find them, but ask your doctor to show you. Then, try finding them yourself, regularly. I have to close my eyes and focus but can’t find them now. Practice and learn what they feel like and report any changes immediately to your doctor.

If anything good comes out of this, I hope the women who felt my boobs and lymph nodes can better monitor themselves so they can better understand what they are looking for on their self-exams. I only wish I head learned what it felt like before having cancer myself.

Triple-positive breast cancer

A number of people privately asked me about the kind of cancer I have and my treatments, so I figured I would post it here since I’ve had the question a number of times.

I have what is called ‘triple-positive’ stage 3 breast cancer. The triple-positive refers to the fact that my cancer is stimulated by estrogen, progesterone and HER2 (short form for “human epidermal growth factor receptor 2” protein). About 20 years ago, being diagnosed with HER2-positive cancer was a death sentence. But, things have changed drastically since then due to the discovery of targeted therapies.

I found the following 2 articles helpful in explaining “triple-positive” and HER2-positive breast cancer in laymen’s terms:

https://www.verywellhealth.com/triple-positive-breast-cance… 
https://www.medicalnewstoday.com/articles/316789.php

Because I am triple-positive, I also have to be cognizant of what I eat since there are a number of foods that stimulate estrogen, progesterone and HER2 production. So, I need to limit my intake of many foods. The list is incredibly long and scary. It seems like everything I eat stimulates one of the hormones or protein. At the end of the day, the oncological dietician told me to eat a varied diet and focus on simply cutting out processed foods, otherwise I will starve and go nuts trying to figure out what I can / can’t eat. But who knew that too many berries, too many mushrooms or too much broccoli could make matters worse?!?

I also had a couple of questions re: my treatment and side effects but will write about those another time.

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Participating in cancer research

I’m excited to have been called by the AMBER Study. It’s a study that is looking at the impact of lifestyle and physical activity has on breast cancer (stages 1-3C) have on survivorship. The study started in 2012 and the final survivorship results should be available in early 2030. I’m one of the last 50 recruits being accepted into this study.

If I am going to get cancer, I might as well contribute what I can to research in the hopes of increasing survivorship for other cancer patients down the road. At least I am doing something positive for society with my shitty situation.

Today, I had anthropometric measures taken, as well as a PAR Q+ pre-screening and have a DXA Scan completed. Then, I had some fitness measures done, including the Bruce Treadmill Test. Lastly, paperwork! There are 4 questionnaires that will take approximately 3 hours complete. I have been sent home with 2 activity monitors that will be on me at all times (with the exception of bathing) for one week.

In doing my part for cancer research. I had to wear the big mask instead of the smaller mouthpiece because of my mouth sores. I dislike cardio on a good day. I dislike cardio more with a mask on even though it doesn’t change my breathing. It’s psychologically restrictive!

Are my posts motivating, uplifting or give you hope in the future of cancer research? If so, feel free to buy me a coffee or contribute towards some of my uninsured medical expenses.